Updates on the Crunchy Journey

Six years ago when I first started paleo I did great! I easily lost 40 pounds (of which I have kept 20 off), had great energy levels, good sleep most nights. Then I moved and started a new full time job and after a few months fell off the wagon – I’ve yet to get back on for a sustained amount of time.

In the meantime I’ve struggled with GI issues, fatigue, anxiety and in the last year numbness in my extremities, muscle fasiculations, back pain, muscle and joint pain, and abdominal pain above and beyond my usual IBS symptoms. This started me down the path of blood tests and imaging studies, visits with neurologists and GI specialists, even a liver biopsy. Somewhat scary lab results (like a high ESR and CRP) and most recently to autoimmune markers that point to a strong likelihood of RA (though I have not yet had an official diagnosis of anything).

As somewhat scary as it is to have a probable autoimmune disease, I’m also happy that after four years of progressively feeling worse we are finally nearing some answers… When I told my mom that they found autoantibodies that pointed towards RA she commented, “I’ve never seen someone so happy to find out that they might have rheumatoid arthritis!” But when you have been feeling bad for years and are convinced something more than just poor sleep or being overweight is the cause of your issue, finally getting some evidence that you were right all along feels like a win!

Sadly, I know my story is the norm when it comes to autoimmune disease, because at first the symptoms are so vague and general that it really could be just poor sleep, life stress and/or lifestyle factors… (even with autoimmunity those things are super important)… Symptoms are also often systemic, and there are not really any autoimmune specialists, rather patients must see specialists for all their varying symptoms. A GI doc for their digestive issues, an endocrinologist for their thyroid, a rheumatologist for their joint pain and of course their GP for general wellness check ups and to get referals for all the specialists. According to the AARDA it takes an average of 5 years (and five doctors) before a patient receives a diagnosis. By that metric I am right on time to be (hopefully) nearing a diagnosis.

Now again, I don’t know for sure that I have RA, there are still other tests to do and the autoantibodies they found in my bloodwork can also be present in other autoimmune conditions and even non-autoimmune conditions (like lung infections and cancer). Once we have pinned down a more firm diagnosis I will definitely follow up. Nevertheless…

I’m thankful that my healthcare providers believed me when I said my troubleshooting wasn’t helping and I still wasn’t feeling well. I’m thankful they were willing to order tests even if the likelihood was low that anything would turn up. I’m thankful we are working to find answers and not just fix symptoms. I’m thankful that I have insurance and even though the bills have been pricey, they have so far been manageable. I’m thankful that I have a job that has allowed me to take the time off of work that I have needed for doctors’ appointments, testing and PT. I’m thankful to have a job I enjoy which makes it much easier to come in and find meaning and pleasure in your work even on days when you aren’t feeling great.

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