So I went to see my first rheumatologist this past week. Overall I felt the appointment was good. The doctor let me just list all my many symptoms (mostly pain related) that have come on over the last couple year. Then we ran more blood work, took x-rays and did a physical exam. I was not sure what to expect, but I really liked that she let me just spew symptoms at her and at the end of our appointment she asked if I had any questions. Which I did (because I went prepared), only one of which was pressing.
All the tests came back a couple days ago and she called me to follow up. Not her nurse or a medical assistant, she phoned me directly. That was nice, and almost a first in my experience with allopathic doctors. She is pretty sure I have early stage rheumatoid arthritis and wants me to start taking heavy dose NSAIDs and a mild first line DMARD.
Even though I really liked this doctor, I am still planning on seeking a second opinion. With something like a chronic autoimmune disease I feel I have to do my due diligence and get at least two opinions. Once I get a second opinion I think I can move forward; decide which specialist to see long term as my rheumatologist and also really start chipping away at the lifestyle stuff.
For me the first step will be to move towards an AIP elimination diet. I have already cut out alcohol (not hard since I never drank much anyway) and coffee as well as diligently adding vegetables to every meal and eating fish 2-3 times per week. Next I will cut out gluten and dairy while adding bone broth and more veggies. I would like to get up to 2-3 servings of veggies per meal. Eventually I would like to do full AIP for a month or two, including weaning off my NSAIDs, followed by reintroduction.
I would also like to get back into restorative yoga once per week to help with keeping my joints mobile and help with mindfulness and stress management.
As part of this journey I would also like try acupuncture, visit a naturopath (and maybe even make a naturopath part of my care team), experiment with essential oils for pain, go on a spa retreat, work to reduce my toxic load with things like all-natural cleaning products, organic cotton sheets and even more all-natural body care and makeup. What things would you add to this list?
If you have an autoimmune disease, what things were most helpful for you to bring symptoms under control?